Director, US Patient Advocacy & Professional Engagement

At Insmed, every moment and every patient counts — and so does every person who joins in. As a global biopharmaceutical company dedicated to transforming the lives of patients with serious and rare diseases, you’ll be part of a community that prioritizes the human experience, celebrates curiosity, and values every person’s contributions to meaningful progress. That commitment has earned us recognition as Science magazine’s No. 1 Top Employer for five consecutive years, certification as a Great Place to Work® in the U.S., and a place on The Sunday Times Best Places to Work list in the UK.

For patients, for each other, and for the future of science, we’re in. Are you?

About the Role:

We’re looking for a Director, US Patient Advocacy & Professional Engagement to help us expand what’s possible for patients with serious diseases. Reporting to the VP, Patient Advocacy, the Director, US Patient Advocacy & Professional Engagement will play a pivotal role in building and leading US-based patient advocacy and professional society engagements and collaborations, with a focus on Bronchiectasis and NTM Lung Disease.

The primary goal for this role will be to cultivate positive relationships with patient communities, advocacy groups, professional medical associations and individual patients, to better understand their needs, experiences, and challenges. This individual will be instrumental in providing the patient voice and perspective as we design and implement our clinical development programs. You will be the bridge between patients, patient organizations, and our organization, ensuring their perspectives influence our decision-making processes, clinical development strategies, and patient support initiatives. You will lead engagements with professional medical associations by setting the strategy and leading execution to evolve disease understanding and education.

What You'll Do:

In this role, you’ll have the opportunity to Develop and implement an External Partner engagement strategy aligned to internal business needs and external community needs.  You’ll also:

• Partner with Patient Organizations to identify and implement innovative initiatives to empower patient communities to seek optimal and informed care.

• Participate in and support Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement.

• Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives and partnerships intended to address the evolving medical science related to Insmed’s therapeutic areas, as directed.

• Provide insight into Health Policy and Access & Reimbursement trends to ensure Patient Organizations have a thorough understanding of the access and reimbursement landscape.

• Implement a detailed framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle.

• Engage with patient advocacy groups, foundations, and individual patients to see their point of view and needs as it relates to Patient-Focused Drug Development.

• Establish and maintain strong relationships with key collaborators in the patient community.

• Collaborate with cross-functional teams to ensure patient perspective is internally understood and incorporated into company culture and patient needs are considered at all stages of product development.

• Collaborate with Clinical Development, Medical Affairs, Regulatory, Corporate Communications, Human Resources, Legal, and Compliance to ensure that Insmed’s core values and corporate brand are represented in internal and external initiatives.

• Represent the company in external forums and conferences related to patient advocacy.

Who You Are:

You must have a Bachelor's degree in life sciences, healthcare, public health, or a related field and 10+ years’ experience in patient advocacy/engagement or closely related roles within the biotechnology and pharmaceutical healthcare industries.  Additionally, you have:

• Deep understanding of respiratory conditions, including NTM Lung Disease and Bronchiectasis, with an ability to communicate complex scientific concepts to diverse audiences.

• Consistent track record of performance in developing and driving strategic projects, including leading budgets.

• Excellent communication and social skills to engage with patients, advocacy groups, and internal collaborators effectively.

• Experience working across multiple therapeutic areas and prioritizing appropriately.

• Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team.

• Deep appreciation for patients and their families, with a passion for advocating on their behalf.

• Knowledge of regulatory and ethical considerations related to patient advocacy and engagement.

• Familiarity/experience with regulatory and pharmaceutical legal promotional review processes.

• Passionate for making a difference in the lives of patients with serious and rare disease.

• Acute organizational skills with a strong attention to detail, clarity, accuracy, and conciseness.

Nice to have (but not required):

• Advanced degree (MBA, PharmD, PhD, MD) strongly preferred.

Where You’ll Work  

This is a fully remote role. It can be performed effectively from anywhere while staying connected to your Insmed team and community. Occasional travel for team meetings or events may be expected.  

Travel Requirements 

This role requires occasional domestic travel (approximately 10-20%).

#LI-MM1
#LI-Remote

Pay Range:

$177,000.00-242,000.00 Annual

Life at Insmed
 

At Insmed, you’ll find a culture as human as our mission—intentionally designed for the people behind it. You deserve a workplace that reflects the same care you bring to your work each day, with support for how you work, how you grow, and how you show up for patients, your team, and yourself.

Highlights of our U.S. offerings include:

• Comprehensive medical, dental, and vision coverage and mental health support, annual wellbeing reimbursement, and access to our Employee Assistance Program (EAP)

• Generous paid time off policies, fertility and family-forming benefits, caregiver support, and flexible work schedules with purposeful in-person collaboration

• 401(k) plan with a competitive company match, annual equity awards, and participation in our Employee Stock Purchase Plan (ESPP), and company-paid life and disability insurance

• Company Learning Institute providing access to LinkedIn Learning, skill building workshops, leadership programs, mentorship connections, and networking opportunities

• Employee resource groups, service and recognition programs, and meaningful opportunities to connect, volunteer, and give back

Eligibility for specific programs may vary and is subject to the terms and conditions of each plan. 

Current Insmed Employees: Please apply via the Jobs Hub in Workday.

Insmed Incorporated is an Equal Opportunity employer. We do not discriminate in hiring on the basis of physical or mental disability, protected veteran status, or any other characteristic protected by federal, state, or local law. All qualified applicants will receive consideration for employment without regard to sex, gender identity, sexual orientation, race, color, religion, national origin, disability, protected Veteran status, age, or any other characteristic protected by law.

It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.

Insmed is committed to providing access, equal opportunity, and reasonable accommodation for individuals with disabilities in employment, its services, programs, and activities. To request reasonable accommodation to participate in the job application   or interview process, please contact us by email at [email protected]  and let us know the nature of your request and your contact information. Requests for accommodation will be considered on a case-by-case basis. Please note that only inquiries concerning a request for reasonable accommodation will be responded to from this email address.

Applications are accepted for 5 calendar days from the date posted or until the position is filled.

For New York City Residents:

To assist in identifying candidates with qualifications matching those required and/or preferred for this role, Insmed uses an Automated Employment Decision Tool (“AEDT”) that employs artificial intelligence to analyze and score information provided in resumes and application materials including, but not limited to, skills, work experience, education, and job-related qualifications. The AEDT does not make final hiring decisions and all final hiring decisions are subject to human oversight and/or review.

If you are an applicant for this role and a New York City resident, you have the right to request:

• A reasonable accommodation, if one is available under applicable law, by emailing [email protected]; and/or

• An alternative selection process by emailing [email protected].

• Information about the type of data collected, the source of that data, and data retention practices related to the AEDT by emailing us at [email protected].